The Government is grappling with changes to how we support children with developmental delay and autism, moving them from the NDIS to the proposed ‘Thriving Kids’ program. A parliamentary inquiry is looking into the design of the program.
To ensure the voices of Curtin families, educators and health professionals are heard in this design process, I created a community survey to inform my submission to the inquiry, which contains 11 recommendations.
There is no doubt that support for families of children with developmental delay and autism could be better. Almost all respondents to my survey have experienced delays in accessing assessments or interventions, with 73% reporting frequent delays.
Families are understandably concerned that they may lose the support they have worked so hard to get under the NDIS, in the shift to Thriving Kids. Families told me that they need clear, centralised information so they can navigate their journey through diagnosis and support. Streamlined processes, consistent rules, and improved transparency about waitlists and service availability would also make life easier.
I heard about the need for more trained specialists, reduced waiting times, and more affordable assessments and services on offer for children and families.
Early intervention can make a big difference. Screening in early childhood and school settings, combined with increased support for teachers and clearer referral pathways, would result in more timely intervention.
Parents want to be met with empathy and clarity, not bureaucracy and confusion. Educators and clinicians are calling for better collaboration between health, education and disability sectors.
I am meeting with the Committee conducting the parliamentary inquiry to discuss my community submission. We must build a system that listens to families, supports professionals and puts the needs of children first.
My full submission will be available on my website as soon as it is accepted by the Committee.